Advancing awareness, understanding, and treatment of DEAF1-Associated Neurodevelopmental Disorders.

Our Mission

The DAND Alliance is committed to advancing awareness, understanding, and treatment of DEAF1-Associated Neurodevelopmental Disorders (DAND): the Vulto-van Silfhout-de Vries Syndrome (VSVS) and NEDHELS Syndrome.

Through community engagement, scientific research, and collaborative partnerships, The DAND Alliance aims to improve the quality of life for affected individuals and their families.

Your contributions help fund critical research and advocate for better care.

Every donation, big or small, brings us one step closer to better treatments and, hopefully, a cure.